Friday, December 14, 2018

figuring out this interesting body of mine


so now that i have two cocktails of medications per day.. i'm figuring out what is helping what. so it makes sense to me why i'm taking each one.

in the morning i take-
protonix for GERD
vitamin D3 5000 UI for vitamin D deficiency (part of my tiredness and lack of energy)
fish oil for history of heart issues in the family, and my own abnormal heart beat, POTS problem
multivitamin because i'm vitamin deficient, can never get enough (chewable because the pill form is too big to swallow- dysphagia)
allegra for allergies (horses, penicillium mold) and flonase (excess drainage and abnormal amounts of mucous)
Zoloft 100 mg for anxiety- this only treats some of my anxiety, since my body also makes too much adrenaline. But it does help.

miralax in my water to help with my IBS once a day

dinner i take magnesium citrate to help with constipation, muscle spasms and twitching (nerve helper)

after dinner i have a night time cocktail- 
corgard to help prevent headaches, including chronic migraines
requip for my restless leg syndrome, help calm my nerves
pamelor as a mild antidepressant which also makes me drowsy


I have 800 mg Ibuprofen for pain, excedrin migraine when i need it, maxalt as a back up for bad migraines
My inhaler in case i get out of breath or tightening/pain in my chest. It works about half the time, because of my POTS, it doesn't always have to do with my lungs. Sometimes it's really just my autonomic system going haywire. 

DHEA spray to level out my testosterone and estrogen, also helps with libido, also helps clear up my acne and helps it heal better. 
Zofran for days when the nausea is just too much.

.........
That's just the meds that help make my body feel mostly "normal", whatever that means. 

I also have a much stricter diet, because of all the foods that i'm sensitive to. 
Gluten free- ads to IBS (constipation), keratosis polaris and inflammation
Dairy free- ads to IBS (diarrhea, bloating, gas) and breakouts
Soy free- messes with my hormones, mood fluctuations
as Acid free as possible- inflames my bladder and GERD problems. (no acid fruits or veggies, dark coffee only)
lower fat foods- cutting back on beef, basically no pork/bacon, have to eat lean meats (turkey, chicken) and eggs since i don't get the benefit of some fruits and veggies and can't eat beans/legumes. too much fat messes with my sphincter, creating more GERD problems. 
as Sugar free as possible- ads to inflammation and brain fog.

........
finding out I have EDS has actually really helped me, so now i know that things i thought were normal were really things that were abnormal, and i've been able to adapt to a new way of thinking, a new way of eating, a new way of living. 
not working outside the home anymore, being able to keep the house clean for my family and being here more for them. 
so much more enriching and mindful.

I now have an awesome PCP, rheumatologist, neurologist, gastroenterologist, urologist, cardiologist, and dentist. ;) For the most part, I love my medical team!

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